HOSPITAL REFUSES TO REMOVE PATIENT’S DNR
Patient’s Lips and Facial Skin Were Cracked and Bleeding from Wearing BiPap for a Month
Our whole family caught Covid on a trip. Upon our return, five of us adults all had symptoms; our children did not have any symptoms. My husband (43 years old) was the first to experience the symptoms and the first to need oxygen supplementation. We all (five adults) took a round of Ivermectin. It seemed to improve our symptoms significantly. However, after approximately four days, pneumonia set in for my husband, his brother, and his mom and dad. I experienced all symptoms, but no pneumonia. I was the only one to lose my sense of taste and smell, which possibly protected me from going to my lungs.
After attempting to contact every doctor we knew, our only option was to go to the Emergency Room (ER). We were trying to avoid hospitalization at all cost out of fear of being trapped and killed in the hospital, but my husband’s oxygen was dropping and he was having a hard time breathing. He was treated for six days, given five days of oxygen (non-high flow) Remdesivir, steroids, anticoagulants, and antibiotics; however, he refused the plasma. He was discharged on day seven on oxygen.
My in-laws were diagnosed at an ER with Covid on Friday and sent home despite asking for monoclonal antibodies. They were told to call infectious disease on Monday. Monday came around and they were never contacted, nor were we able to find them anywhere. Three days after my husband was hospitalized, my father-in-law’s oxygen was dropping as well. He decided to go to the same hospital my husband (his son) was at. My mother-in-law, Liliana, decided to accompany him so he wouldn’t be alone. Little did we know that this would be a decision that would cost her her life.
My father-in-law was placed on regular oxygen and given the same protocol as my husband. He was discharged five days later after his oxygen levels improved. However, he was discharged without anticoagulants and after four days, we needed to readmit him due to a pulmonary embolism.
My mother-in-law was admitted to the more severe Covid floor on high-flow nasal cannula. This is where I feel they killed her. After five days of Remdesivir, anticoagulants, antibiotics, and steroids, she wasn’t showing improvement. She was given a CT scan and five more days of Remdesivir. Her CT scan showed a leak in her lung which made her difficult to intubate; however, on day 14 they attempted to intubate and we refused. After that refusal, they placed her on Do Not Resuscitate (DNR). Despite me saying that we weren’t refusing it completely, just waiting to see if she can get better on her own, they would not remove the DNR. All the while begging to see her, begging to have my father-in-law taken to her room as he was also admitted, not being allowed access to her unless she was about to die.
I tried to contact every person I could think of. The only moment I saw any action being taken on her situation was when a family member, also a medical director in another state, went to the hospital with me and sat in the lobby demanding to speak to the medical director of the hospital. We finally had a meeting via video conference to address her case. They all basically stated that there was nothing left to do, and they allowed us 15 minutes to see her. This was already one month after she had been in the hospital, alone, neglected, starving, and dehydrated.
The night I was allowed in with my father-in-law, she was already weak and not all there. She told us “I can’t anymore.” She was ready to go, but we were not ready to let her go. We found her tied to the bed, because they said she was trying to take off her BiPap. She was swollen and bruised from all of the needles she received from twice daily pokes for blood samples. She had lost her IV about 2 weeks in and they were unable to insert a new one. This was absolute torture for her. She always hated being poked with needles. She also still had her wedding ring on which we noticed when we made them remove her mitts that had her tied to the bed. She was so swollen the wedding ring was cutting off her circulation to her finger.
We insisted they remove the BiPap to give her a break. Her lips were all cracked and bleeding as was the skin on her face from wearing the BiPap for almost a month. They told us this was impossible. When our 15 minutes had passed, they insisted we needed to leave. She was already so weak that she had slipped back into sleep and didn’t notice we left. Two days later I received a call that she managed to get her BiPap off (despite still being tied to the bed), her oxygen dropped and she couldn’t recover. They were requesting permission to intubate. We agreed. The Intensive Care Unit team was excellent, but it was already too late. Two weeks on a ventilator and she wasn’t showing any reaction to neurological tests. The night before she passed away she had a heart attack and was resuscitated. They told us that she wasn’t going to survive this, so my father-in-law made the decision to end her misery and remove her off of life support. We contacted hospice for help. They assisted us in allowing her sons and husband time to say goodbye, but the hospital would not allow us to be there when she was removed from life support. She died alone.
A woman always surrounded by people and family. The heart and soul of the family. The mother who always had a meal ready, in order to ensure her family would stay close. The woman always at the center of the fun and parties at her home, was denied her family’s presence at the moment of her passing. I don’t understand how we got so far away from basic human rights during this egregious disaster. She died because she was alone, isolated, and had no one to advocate for her from her bedside. They over-treated her. We even begged to have her rolled outside for fresh air and sun after two weeks, also refused. There was no way she could have survived the torture they imposed on her. No one would. They pumped her full of poison, forced oxygen into her lungs, deprived her of nutrition, water, love, care, sun, movement, or freedom. She was imprisoned and tortured, and we were helpless.
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